I Hate This Disorder (Bad Deb Day)

Hey, y’all–

I was just on bipolarcentral.com, and saw what was written as the advertisement for this blog, and the part about my sharing the “ups and downs” of living with BP caught my eye. I tend to forget about that in the day to day part of this thing. I haven’t been on here in a few days, because I have been more on the “down” side of things, just getting by myself. I like to get on here and dispense these wonderful pearls of wisdom to help y’all, but sometimes, well, like I wrote the other day, there are just those “sucks to be me” days anyway! We all have them. Believe it or not, even people who DON’T have BP get depressed from time to time! It just seems so much harder for us, maybe because we are so much more aware of it, I don’t know.

These days I am cycling in and out, and that does not make Michele a happy camper. Although the peaks and valleys are not as high and low as they were, they are still there, even with the best of medication. I had hoped that with stability would come cure. I know, I know, a fairy tale, to be sure. But we can still dream, can’t we? And in the meantime, we live each day, each hour, each moment, the best we can, and make the sweetest lemonade we can make with the lemons we have to work with! Ok, so some days the lemons are sweet, some days they are sour, and some days they are just plain rotten! But we do the best we can. It’s all we can do.

Ok, so explaining the title of today’s entry… Some of you know, but some of you are new to this blog and don’t know, so I’ll tell you. My sister’s name was Debi. She was 3 years younger than me, but I called her the twin of my heart. She had BP like me, but last summer she went off her medications, and this past April she shot herself. When she died, she almost took me with her. It felt like half my heart had been cut out of my body. I even had chest pains and problems breathing for a while. Emotionally I was devastated. I went into an episode myself. I wanted to die. I was so angry–at her, at God, at life. I especially hated people who told me that eventually things would get better–that life would go on. Life would never go on for me, I thoroughly convinced myself. My sister was not only my best friend, but she was the only person in the whole world who I knew loved me. The only person. And without her, there was no love in my life at all. There was no anything. Nothing good. Nothing bad. Just nothing. Only this huge, gaping hole, where Debi used to be. I never thought I would be able to go on without her. I never wanted to.

But the people who said eventually I would be able to go on without my sister were right. Eventually I went one whole day without falling to pieces, without crying all day and wanting to die. Then two days. Then three. Then a whole week. Then two weeks. Now it’s been four months. Suicide is no longer an option for me–I have a 15 year old son to whom I am an ONLY parent (his dad died a year ago this Sept). But for two whole months after Deb died, only my body was alive–my heart and mind were nowhere to be found here on this earth; they were with my sister, the twin of my heart.

When I met David Oliver and got involved with bipolarcentral.com, I found a reason for living again. I found a way to make Deb’s death count for something. I help so many people now–I tell her story, as much of it and as often as I can, so that other people with BP will understand how devastating this illness can be–both for the one who has it and for the loved one… so that the sufferer who is thinking about suicide as a way out will think again when they read about all the pain my sister’s death caused her husband, her sister, and her family, those left behind… so that those people with BP will think twice about going off their medication, knowing that they may become one of the statistics, the 20% who WILL (not MAY) kill themselves from BP.

So I say all that to say this. I have days now, that I call “Bad Deb Days”, that seem to come completely out of the blue, that pierce my heart like a sword, and I bleed my loss all over my living room carpet and anyone who dares to stand close enough to me… and my sobs wrack my body, until I just cannot cry any more, and the pain is bone deep, crushing my very spirit, and I feel so very lost and alone without my sister, my best friend, the twin of my heart… and I wish that I had just one more day with her, just one more day, had just one more chance with her, just one more chance, to tell her that I love her, to ask her to get help, to plead with her to hang on, to beg her to go back on her medication–ANYTHING, just anything…anything, to keep her with me for just one more moment. I would have done anything in the world not to lose her. But I couldn’t do anything. Nothing. The saddest part of all is that NO ONE COULD DO ANYTHING TO HELP HER. NO ONE COULD STOP HER FROM KILLING HERSELF. And that is the saddest part of all. That is why I cry today. That is why my pain is so sharp it threatens to pull me under. Because of the very helplessness of it all. The truth is, my baby sister, my love, my twin, my heart, my life… killed herself because she made a decision to stop taking her BP medications. And she made a decision to stop listening to the doctors and her loved ones. And she made a decision to not accept the help that was offered her. And she made a decision to buy a gun and take her own life.

My Debi, my sweet, sweet, baby sister…killed herself. And there was nothing I or anyone else could do to stop her. And today on this Bad Deb Day, I am furious! I am furious, because I hate this disorder with everything that is within me. If it was a living entity, something outside my body, I would take the gun my sister held, and I would shoot it to death, and keep shooting, and keep shooting, until someone would have to pry that gun out of my fingers, because of the absolute wrath that I feel, for the lives this disorder has stolen, the lives that this disorder has destroyed, the marriages this disorder has ruined, the relationships this disorder has beaten to a pulp until there is nothing left. I hate this disorder with everything there is within me. It killed my sister. But I will be damned if it will kill me.

Michele

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4 Responses to “I Hate This Disorder (Bad Deb Day)”

  1. Bill says:

    You know, as I read your page I know just how you feel… I know too what BP can do not only to the person with it but to those who love them…

    Yes, I said loves them for Deb was loved not only by me but by so many people.. She just didn’t know…

    I know it must be hard to live with BP but the reality is there are people who love you, need you and care about you…

    To kill yourself is the most selfish thing you can do… I loved Deb more than life it’s self…

    So now I too must go on without her, a picture in a frame… and it’s not fair… To me to you and to anyone who is left behind….

    So if anyone is thinking about taking your own life STOP and think what it will do to the people who love and care about you… You can’t be that self centered….

    Through all the years and miles……
    The roads we traveled..
    The hopes and the smiles…
    The rain and the pain….
    The laughter and the jokes…..
    All comes down to just a picture in a frame….

    Bill…. Debs soulmate…

  2. Theresa says:

    I, too know the impact of some one you love taking their own life. My exhusband’s father killed himself when I was pregnent with his first grandchild. That was 28 years ago and I still hurt. But I would like to say to you that in the short time I have been reading this blog page, you are now playing a very important part in many peoples lives and I’m sure it is safe to say that even though we will probably never meet you, we all care very much about you. You have an amazing gift for sharing your feelings in such a way that they impact my life and help make it better just knowing you are here. I know the bad days will always come back, but when they do please come to this page and re read all the great things people have said to you about what you are doing here.

  3. NeverEnough says:

    My husband shot himself last September and I am the bipolar one. I’m having a Bad Jen Day myself. You are not alone.

  4. Theresa says:

    I could really use some help. As I said in a prior post, my husband was diagnosed bipolar 8 months ago. One of the big issues is he feels he wants to be with other women. He has told me he has no idea why he has these feelings but he has no desire to control them. I guess I should tell you we did not have a troubled marriage until bipolar entered our life. I need to know if there is a spouse or bipolar person out there wo has had this problem and if you could share what happenes with this type of problem and will the medication eventually help with this or has my husband just decided it would be more fun to play the field again By the way we have been married 18 years and or 49 and 53 years old. Please, Please, Please help me

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